OCC Forum - Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 http://oneclickcarehk.com/forum/forum.php?mod=forumdisplay&fid=95 Latest 20 threads of Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 Copyright(C) OCC Forum Discuz! Board by Comsenz Inc. Wed, 29 Apr 2026 10:18:11 +0000 60 http://oneclickcarehk.com/forum/static/image/common/logo_88_31.gif OCC Forum http://oneclickcarehk.com/forum/ 《共生》港故 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1569 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Wed, 06 Jan 2021 09:55:18 +0000 脊髓肌肉萎縮症藥物在港註冊逾兩年半　罕見疾病聯盟倡... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1568 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Wed, 06 Jan 2021 09:53:33 +0000 罕藥註冊逾兩年僅一位成年患者受惠　團體促...... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1564 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 04 Jan 2021 08:54:18 +0000 引入成人脊髓肌肉萎縮症（SMA）的藥物 進展 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1562 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 04 Jan 2021 08:14:55 +0000 2021-01-04 香港電台第一台「千禧年代」－罕見病藥物試用期 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1561 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 04 Jan 2021 08:14:02 +0000 罕見疾病聯盟建議就脊髓肌肉萎縮症新藥推行試用期 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1560 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 04 Jan 2021 08:12:35 +0000 【生命鬥士】兒子患罕見病被指活不過30歲... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1554 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Fri, 11 Dec 2020 10:48:27 +0000 「新紫荊廣場 — 香港有情天環節」 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1508 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Thu, 08 Oct 2020 08:21:09 +0000 輪椅女生難親身購買胸圍被迫穿二手 善心店主創無障礙内... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1498 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Sat, 03 Oct 2020 12:07:15 +0000 生命鬥士】脊髓肌肉萎縮症患者為女權發聲 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1497 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Sat, 03 Oct 2020 12:03:20 +0000 14歲少女患罕見病被評活不過18歲　輪椅上追夢 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1485 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Thu, 17 Sep 2020 05:33:50 +0000 【肌萎少年猝死】 疾病罕見患病率5000分之一 較常人易骨... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1482 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Wed, 09 Sep 2020 13:29:57 +0000 肌肉萎縮症 成年患者求試新藥 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1476 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Thu, 20 Aug 2020 17:56:34 +0000 羅氏藥廠就SMA藥物之介紹 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1473 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 17 Aug 2020 19:08:41 +0000 【新藥新希望】SMA病人可繼續夢想嗎？ http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1472 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 17 Aug 2020 07:01:43 +0000 罕盟就SMA病友用藥向政府提出意見 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1446 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Thu, 09 Jul 2020 11:27:14 +0000 新藥3年僅1成年人受惠 肌萎患者促安排用藥 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1372 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Wed, 03 Jun 2020 08:41:38 +0000 認識和教育脊髓肌肉萎縮症公眾計劃短片第四輯 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1358 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Tue, 26 May 2020 04:35:56 +0000 號稱世上最貴 日本擬將罕見疾病藥物定價逾4500萬 http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1351 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Thu, 14 May 2020 13:01:51 +0000 罕見病】引入新藥3年僅周佩珊獲治療 肌萎患者促政府安排... http://oneclickcarehk.com/forum/forum.php?mod=viewthread&tid=1347 Spinal Muscular Atrophy, SMA 脊髓肌肉萎縮症 occadmin Mon, 04 May 2020 02:57:09 +0000