認識和教育脊髓肌肉萎縮症公眾計劃短片第四輯

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What would you do when faced with a challenge – give up or overcome it? The mother of a Type 1 SMA patient, Liu Tze Fei, chose not to give up on her daughter, although she understood that the path for Tze Fei would not be easy and might even be hopeless. She insisted on raising Tze Fei by herself. Patients with Type 1 SMA normally cannot live more than two years. Under the care of her mum and with support from FSMA, Tze Fei is now five years old. Tze Fei’s mum reads her stories, plays musical instruments, does exercise with Tze Fei, and takes her out for a “walk” every day. She believes that as long as she doesn’t give up, there may be a miracle in the future.

With the support of Biogen, FSMA turned the stories of various SMA patients and their family members into video clips. FSMA hopes that people in Hong Kong can stay positive and not give up, no matter how difficult the future might be.

「堅毅的力量」認識和教育脊髓肌肉萎縮症公眾計劃短片第四輯

面對困難，你會選擇放棄還是迎難而上？一型脊髓肌肉萎縮症患者廖子菲的媽媽即使知道女兒將來的路一點都不容易，甚至為一般人眼中的絕望，她也沒有選擇放棄女兒，堅持要照顧她成長。一型脊髓肌肉萎縮症患者一般活不過兩歲，子菲在媽媽悉心照料及脊髓肌肉萎縮症慈善基金的支援下，今年經已五歲。子菲媽媽每日為女兒唸書，跟她玩樂器，做運動，帶她外出走走。她相信只要不灰心和絕望，說不定未來會有奇蹟。

脊髓肌肉萎縮症慈善基金（FSMA）在渤健公司的全力支持下，將多位脊髓肌肉萎縮症病友及家人的故事，拍成短片，希望大家與子菲媽媽一樣，無論前路有多困難，都不放棄，積極向前。