無聲的苦難： 亞太地區罕見疾病 之認知與管理評估

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Economist Intelligence Unit Study

Suffering in silence: Assessing rare disease awareness and management in Asia-Pacific

Background:
The collective challenge of rare diseases has risen up the policy agenda in both the Asia-Pacific region and globally. Various new and revised health and social system measures in Australia, China, Japan, South Korea and Taiwan—along with the 2018 Asia-Pacific Economic Co-operation (APEC) Rare Disease Action Plan—reflect a growing recognition of the need to act.

In November-December 2019, The Economist Intelligence Unit surveyed 503 healthcare professionals across five Asia-Pacific markets to gauge their understanding of rare diseases and identify the challenges faced by national health systems.

Full Report (ENG):

https://eiuperspectives.economist.com/sites/default/files/eiu_suffering_in_silence_rare_diseases_apac_report_0.pdf

經濟學人智庫研究
無聲的苦難： 亞太地區罕見疾病 之認知與管理評估

背景：
無論在亞太地區或是全球各國，皆開始於政策議程探討罕見疾病所面臨的集體困境與挑戰。在澳洲、中國、日本、南韓和台灣，各種新的以及修訂醫療系統和社會制度措施，加上2018年「亞太經濟合作組織(APEC)罕見疾病行動計畫」，反映出人們日益認知到採取行動的必要性。

於2019年11月至12月，經濟學人智庫 (The Economist Intelligence Unit)調查了5個亞太國家的503名醫療專業人員，以評估他們對罕見疾病的了解，並找出國家醫療系統所面臨的挑戰。

完整報告(中文)：
https://eiuperspectives.economist.com/sites/default/files/eiu_suffering_in_silence_rare_diseases_apac_report_tw.pdf